Monday, February 24, 2020

When it comes to cancer, childhood experiences matter


I am a 12 year survivor of Stage I invasive breast cancer, and a 17 year survivor of non-invasive ductal carcinoma in situ (DCIS). When I was first diagnosed with DCIS in 2002 and, I confess, again when I was diagnosed in 2007, I allowed myself a few hours of indulgent, melodramatic, self-pity – why me? Haven’t I been through enough already? Why do I have to have cancer, too after everything else!? I think a lot of people diagnosed with cancer go through some version of "why me" as we struggle to cope with the diagnosis and all the fears that come with it.

So many people think that if a person has been through a lot of adversity in their life, they just shouldn’t have to go through cancer, too. Where is the justice in that? We all want to believe that there is a limit to how much pain and suffering one person should be forced to endure. 

Of course, we are learning more all the time about how these early exposures to adversity  actually DO increase our vulnerability to getting cancer. The evidence is growing that there are strong links between childhood adversity, in particular, and health problem like cancer in adulthood.  When I first heard about the research around Adverse Childhood Experiences, or ACEs, I decided I needed to learn more.  

ACEs have been proven to harm developing brains, can change how children respond to stress, and can even profoundly damage our immune systems for decades afterward. ACEs can lead to chronic diseases later in life, to mental illness, and to high-risk health behaviors in adulthood. It comes as no surprise, then, to see research that links childhood adversity and abuse to mental illness, drug addiction, and certain disease, including cancer. According to the research so far, two-thirds of Americans have been exposed to one or more ACEs. 

So, I had to see, what are these ACEs, and how many of them did I have when I was a kid.  I started by taking the Adverse Childhood Experiences Quiz, and learned pretty quickly that I had been exposed to 7 out of 10 Adverse Childhood Experiences. SEVEN out of TEN. 



Here are the ACEs the researchers identified:

1.     Physical abuse

2.     Sexual abuse

3.     Verbal abuse

4.     Physical neglect – not having enough food or clean clothes, etc.

5.     Emotional neglect – absence of being made to feel loved or special, or to feel close to other people in your family

6.     Witnessing a mother being abused

7.     Having a family member in prison

8.     Losing a parent to separation, divorce, or some other reason

9.     Living with someone who is depressed, diagnosed with a mental illness, or suicidal.

10.   Living with someone who is a problem drinker or alcoholic, or who used street drugs.



Learning about ACEs really changed my perspective about my cancers. If the link between ACEs and cancer is real, that means that instead  of asking “why me” when kids like me grow up and get cancer, we should be asking “why not me” when kids like me grow up and do NOT get cancer. 

In addition to my cancers, I also have a history of alcoholism and anorexia, and am now dealing with chronic health conditions some which can potentially be the result of cancer treatment or lifestyle choices that I have made. There’s always the chance, based on this research, that many of my health concerns can be linked to ACEs. Which does not mean that I, or any of us, should just throw up my hands and say, “look, I can’t do anything about this, it’s inevitable!” 

Instead, I think this means that we have to fight twice as hard, to counteract our history, if we want to overcome our childhoods and live a long and healthy life.

Which I do.